Skip to main content
Log in

The Reach and Accuracy of Information on Autism on TikTok

  • Brief Report
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

Purpose: Although social media platforms have made information about autism more accessible to the general public, concerns have been raised about the unfiltered nature of the content they host. In the current study, we examined the reach and accuracy of videos providing informational content about autism on TikTok, a popular social media platform. Methods: We examined engagement indicators (including views and “likes”) for the TikTok videos associated with the #Autism hashtag. Two coders independently fact-checked informational content of the most viewed videos from the #Autism hashtag videos and coded it as either accurate, inaccurate or ‘overgeneralization’ based on the consistency of the information in the videos with current knowledge on autism. Results: Videos associated with the “#Autism” hashtag accrued 11.5 billion views collectively. An examination of the top 133 videos providing informational content on autism, which totaled 198.7 million views and 25.2 million likes, showed that 27% of the videos were classified as accurate, while 41% were classified as inaccurate and 32% as overgeneralized. There were no significant differences in engagement between accurate and inaccurate/overgeneralized videos. Videos created by healthcare professionals were more likely to include accurate information. Conclusion: The informational content about autism made available on TikTok reaches a wide number of people. Most of the information provided, however, appears to be misaligned with current knowledge. It is important for healthcare providers and other professionals to be aware of the autism-related content being shared on TikTok so that they can better engage with the large community of TikTok users.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

References

  • Bakombo, S., Ewalefo, P., & Konkle, A. T. (2023). The influence of Social Media on the perception of Autism Spectrum Disorders: Content Analysis of Public Discourse on YouTube videos. International Journal of Environmental Research and Public Health, 20(4), 3246.

    Article  PubMed  PubMed Central  Google Scholar 

  • Basch, C. H., Hillyer, G. C., & Jaime, C. (2022). COVID-19 on TikTok: harnessing an emerging social media platform to convey important public health messages. International journal of adolescent medicine and health, 34(5), 367–369.

  • Burki, T. (2019). Vaccine misinformation and social media. The Lancet Digital Health, 1(6), https://doi.org/10.1016/s2589-7500(19)30136-0.

  • Camp, E. (2023, April 19). Why I am more and more ambivalent about my autism diagnosis. The New York Times. https://www.nytimes.com/2023/04/19/opinion/tiktok-mental-health.

  • Chen, J., & Wang, Y. (2021). Social media use for health purposes: Systematic review. Journal of Medical Internet Research, 23(5), https://doi.org/10.2196/17917.

  • Chen, K., Zhou, L., Zhao, R., & Tang, Y. (2022). Assessing the quality of hearing aids-related videos on TikTok. Frontiers in Public Health, 10, https://doi.org/10.3389/fpubh.2022.901976.

  • Cortes Cavalcante, J., Faria Sales, M., Junior, S., Souto, R. R., Vale, D. O., Gonçalves, R., Camargos, A. C., & Leite, H. R. (2023). Analysis of the brazilian-portuguese content on autism spectrum disorder available on YouTube videos. Physical & Occupational Therapy in Pediatrics, 1–15. https://doi.org/10.1080/01942638.2023.2199843.

  • Fraticelli, L., Smentek, C., Tardivo, D., Masson, J., Clément, C., Roy, S., Dussart, C., Bourgeois, D., & Carrouel, F. (2021). Characterizing the content related to oral health education on TikTok. International Journal of Environmental Research and Public Health, 18(24), 13260. https://doi.org/10.3390/ijerph182413260.

    Article  PubMed  PubMed Central  Google Scholar 

  • Goddard, H., & Cook, A. (2022). I spent most of freshers in my Room”—A qualitative study of the social experiences of university students on the autistic spectrum. Journal of Autism and Developmental Disorders, 52(6), 2701–2716.

    Article  PubMed  Google Scholar 

  • Keenan, C. (2022, September 28). An update on our work to counter misinformation. Newsroom. https://newsroom.tiktok.com/en-us/an-update-on-our-work-to-counter-misinformation.

  • Kong, W., Song, S., Zhao, Y. C., Zhu, Q., & Sha, L. (2021a). TikTok as a health information source: Assessment of the quality of information in diabetes-related videos. Journal of Medical Internet Research, 23(9), https://doi.org/10.2196/30409.

  • Kong, W., Song, S., Zhao, Y. C., Zhu, Q., & Sha, L. (2021b). TikTok as a health information source: Assessment of the quality of information in diabetes-related videos. Journal of Medical Internet Research, 23(9), https://doi.org/10.2196/30409.

  • Lindly, O. J., Cabral, J., Mohammed, R., Garber, I., Mistry, K. B., & Kuhlthau, K. A. (2022). ‘I don’t do much without researching things myself’: A mixed methods study exploring the role of parent health literacy in autism services use for young children. Journal of autism and developmental disorders, 52(8), 3598–3611.

  • Li, Y., Guan, M., Hammond, P., & Berrey, L. E. (2021). Communicating covid-19 information on TikTok: A content analysis of TikTok videos from official accounts featured in the COVID-19 information hub. Health Education Research, 36(3), 261–271. https://doi.org/10.1093/her/cyab010.

    Article  PubMed  Google Scholar 

  • Maenner, M. J., Warren, Z., Williams, A. R., Amoakohene, E., Bakian, A. V., Bilder, D. A., Durkin, M. S., Fitzgerald, R. T., Furnier, S. M., Hughes, M. M., Ladd-Acosta, C. M., McArthur, D., & Shaw, K. A. (2023). Prevalence and characteristics of Autism Spectrum Disorder among Children aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. Morbidity and mortality weekly report Surveillance summaries (Washington D C: 2002), 72(2), 1–14.

    PubMed  Google Scholar 

  • Ostrovsky, A. M., & Chen, J. R. (2020). TikTok and its role in covid-19 information propagation. Journal of Adolescent Health, 67(5), 730. https://doi.org/10.1016/j.jadohealth.2020.07.039.

    Article  Google Scholar 

  • O’Sullivan, N. J., Nason, G., Manecksha, R. P., & O’Kelly, F. (2022). The unintentional spread of misinformation on ‘tiktok’; a paediatric urological perspective. Journal of Pediatric Urology, 18(3), 371–375. https://doi.org/10.1016/j.jpurol.2022.03.001.

    Article  PubMed  Google Scholar 

  • Ruby, D. (2022, December 31). 35 + tiktok user statistics: How many TikTok users are there in 2023? demandsage. Retrieved January 12, 2023, from https://www.demandsage.com/tiktok-user-statistics/.

  • Xue, X., Yang, X., Xu, W., Liu, G., Xie, Y., & Ji, Z. (2022). TikTok as an information hodgepodge: Evaluation of the quality and reliability of genitourinary cancers related content. Frontiers in Oncology, 12, https://doi.org/10.3389/fonc.2022.789956.

  • Yeung, A., Ng, E., & Abi-Jaoude, E. (2022). TikTok and attention-deficit/hyperactivity disorder: A cross-sectional study of social media content quality. The Canadian Journal of Psychiatry, 67(12), 899–906. https://doi.org/10.1177/07067437221082854.

    Article  PubMed  Google Scholar 

  • Zenone, M., Ow, N., & Barbic, S. (2021). Tiktok and public health: A proposed research agenda. BMJ Global Health, 6(11), https://doi.org/10.1136/bmjgh-2021-007648.

Download references

Funding

The authors did not receive support from any organization for the submitted work. All authors certify that they have no affiliations with or involvement in any organization or entity with any financial interest or non-financial interest in the subject matter or materials discussed in this manuscript.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Giacomo Vivanti.

Additional information

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Aragon-Guevara, D., Castle, G., Sheridan, E. et al. The Reach and Accuracy of Information on Autism on TikTok. J Autism Dev Disord (2023). https://doi.org/10.1007/s10803-023-06084-6

Download citation

  • Accepted:

  • Published:

  • DOI: https://doi.org/10.1007/s10803-023-06084-6

Keywords

Navigation